Name: Rob S.
Subject: Chronic Fatigue Syndrome
Date: July 30, 2001
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|To Whom It May Concern,
I am in my late 30's and have had a plethora of SEVERE chronic illnesses for 15 years now. Doctors tried to tell
me it was SEVERE chronic fatigue (to say the least), which I definitely had but that's just the tip of the iceberg,
there was so much more. I was 100% until everything started in 1987, when all of a sudden I started getting chronic
flu-like symptoms, developed a Lupus-type rash across my face, started seeing silver "flash-cubes" popping
all over my field of vision, developed arthritic spinal symptoms, major headaches 24 hours a day, chronic stomach
problems, tiredness, fatigue, weakness, terrible pallor, started developing severe food and supplement sensitivities,
developed prominent dark circles under my eyes, dizziness, and just felt awful.
Everything went downhill from there. I have had a myriad of other problems that have started progressing since
that main onset in 1987, such as a severe progressive degenerative spinal arthritis (it has progressed in 15 years
to the point of being intermittently bed-ridden and unable to work, sleep, or even turn my head), terrible immune
problems, constant infections, many bouts with pneumonia from simple colds, prostate problems, Hypogammaglobulinemia
(blood immune disorder), arthritis in feet, stenosis of the spine, spondylolisthesis of the spine, all discs in
my back are either herniated or bulged from degeneration, chronic fatigue, TMJ syndrome (I have to sleep with a
bite plate every night, such fun), H.Pylori based chronic ulcer, Lupus, Lyme's disease (tested positive), irritable
bowel syndrome, candidiasis, reactions to everything that went in my mouth such as foods, liquids, medicines. Supplements?
Forget about it. I can only eat 3 foods and can only drink one type of bottled water. That's it. I can't go to
restaurants or even out for a casual drink. I even have to use a shower filter, if I don't, the headaches, rash,
and arthritis worsen instantly. The few "vacations" I've attempted to go on, I've had to ship special
water, food, and filters to use in my hotel room, so I don't bother with vacations anymore. In another bad stroke
of luck, I was nearly killed in a 1991 auto-accident, breaking my shoulder, and breaking my left wrist and arm
in 12 places, requiring multiple surgeries to reconstruct my left wrist/hand with metal plates, and then to take
the hardware out. As a programmer and musician ( I am a drummer and guitarist), it would be a long time before
I was able to do either, if at all.
I have seen so many doctors over that last 15 years and have spent everything I have ever earned on them. I have
seen rheumatologists, immunologists, neurologists, opthamologists, neuro-opthamologists, orthopedists, hematologists,
ear-nose-throat doctors, urologists, gastro-enterologists, dermatologists, infectious disease specialists, parasitologists,
endocrinologists, hematologists, acupuncturists, herbologists, chinese medicine specialists, homeopaths, chiropractors,
nutritional doctors, psychologists, physical therapists, dentists, TMJ specialists, have been to "chronic
migraine" clinics, flew to Colorado to have my silver fillings taken out by "the best", have even
tried Ozone treatments and every other mode of alternative and conventional medicine around. None have been able
to help me. In addition, I tested positive for Lyme's disease in 1993 and they proceeded to install a "pick
line" into my arm, a 4-foot-long internal, long-term catheter that goes from your arm to your heart so I could
administer intravenous antibiotics to myself every day for 2 months. This just made me sicker. Needless to say,
I was getting depressed because no one could figure out what was wrong with me, and that my body was withering
away fast. In 1993, I had to go on disability due to extreme malaise and dizziness. I even needed help just to
get out of bed and walk to the bathroom. I went to a top neurologist for the dizziness, he ordered another MRI
(normal) and an "EMG" to test the balance in my ear labyrinth. It came back as "99% no caloric response
in right ear". He then re-tested it at a different lab. Same result. My balance labyrinth in my right ear
was totally failed. Why? He didn't know. He then prescribed some ridiculous prednisone, which made me worse. Keep
in mind, I was extremely strong and active prior to 1987, no problems whatsoever, totally "normal". By
1994, let alone 2001, I had "every test in the book", too many to list here, including multiple spinal
taps, one to re-test for Lyme's disease and one for a "myelogram" (a detailed Cat-Scan of the spine with
radioactive dye shot into the spinal canal, a very risky procedure), that of which caused complications and "spinal
leak headaches" that put me in the hospital for a week, bed for a month with headaches so bad they cannot
even be described, and necessitated another similar procedure, known as a "blood patch" to correct. They
took blood out of one arm and shot it into my spine (after an additional epidural to numb the area) with the premise
of the blood internally dripping down over the original spinal tap "site", internally scabbing, and "patching
up" the hole left by the original spinal tap.
I've been struggling and trying my best to working as a computer programmer all this time so I could pay for the
doctors, trying my best to get through each day, and running to doctors at night and even on my lunch breaks when
necessary. This lifestyle had taken it's toll on me, leaving me at the point of physical exhaustion. Little did
I know that from 1987 to 1996, my spinal arthritis would be insidiously progressing so rapidly that multiple spinal
specialists have told me that my spinal x-rays looked like a 70-year old man's. Now, in 2001, it is far worse.
They just said "you've definitely got a severe metabolic problem of some kind". Gee, thanks. It has gotten
worse by the month. By early 2001, I had been unable to work again and have been hoping for anything to help me
get some strength back.
I heard about Poly-Mva in June, 2001. I managed to finally get up the money to buy a 4 oz. bottle and, after about
6 days, I felt an increase in energy. This in itself is incredible, because NOTHING, and I mean, NOTHING has been
able to make any kind of improvement in my condition for 15 years. I had only taken one teaspoon twice a day, way
below the "loading dose" and for only 6 days! In addition, for the first time in 15 years, I walked for
almost half a mile 2 days in a row! Although I still have many, many problems and spinal pain, the very fact that
such a small amount of Poly-Mva in such a short amount of time made any noticeable difference at all in my energy
level says something about this stuff. In addition, I feel more rested in the morning than I have in a long time.
Based on this improvement, I am going to do whatever I have to do to keep taking the Poly-Mva. My body cannot tolerate
ANY other supplement, even vitamins cause reactions, but I am tolerating the Poly-Mva with NO problem.
It's way too early for me to say that Poly-Mva is going to rid me of all my medical problems but I finally have
hope. I am going to start taking 4 tsps. per day instead of just 2. Should my condition continue to improve, I
will keep everyone posted.
I would just like to say thank you to Dr. Sanchez, Tim Matson, and the rest of the staff for making this product
available for people in need and to keep up the good work. People with integrity in the health industry are not
easy to come by. Thanks again.
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